I imagine some may question how one could continue to play drums (a highly athletic endeavor) with a neurological disorder, and not be able to work.
During my leave of absence in 2007, I discovered 'Fibromyalgia', which certainly seemed to fit all the symptoms I had been experiencing, save perhaps the involuntary twitching. Still feeling like 10 pounds of shit stuffed inside a Dixie Cup after 8 weeks of resting and relaxing, I knew something was wrong. I went back to my neurologist at the time, who sent me to UCSF for a 2nd opinion. This doctor was a MS specialist who said this isn't MS, rather it is more 'Parkinsonian.' I went back to my regular neuro who sent me home on disability, and said I would start receiving treatment for Parkinson's. Health insurance issues prevented me from starting that treatment program until this year.
Going to a job is an 8 x 5 x 52 grind that is simply to overwhelming to even consider. I am almost constantly in fatigue and pain, usually requiring 10 hours of sleep per night. Attention to meds, CPAP maintenance, and other health issues (which can include inexplicable nausea and vomiting) chews up more time. Even if I was somehow able to drag my ass to work every day, I would not be able to give 100%, as evidenced by my work review of my last year at UCCR. I was on my way to being fired when I put in my notice. I could work part time, though, but State Disability Insurance prohibits that. I'll wait until those benefits run out before looking for work. (I may volunteer at Peace in Medicine in hopes of perhaps scoring a part time job there next year.)
Now I say I am almost constantly in fatigue and pain. On occasion, I will experience brief periods of time with little or no discomfort. A couple of hours during the day, on a good day. Maybe. If I stay lo-pro, well rested, and not stressed for a week or so, I may hit a stretch of a week or two where I will almost feel normal. Stress, teenage angst and drama, busy schedule of events in a short period of time, a hectic day of chores and fires to put out can all send me back into episodes of 'brain flu' or 'brain fog', chronic pain and fatigue all over again. Forgetting to take some of my meds is a serious reminder that something is most definitely amiss.
If I had been making my living playing drums in an average working, touring band for a living, well those days would be over. (Now if I had my own drum tech, maybe, but now we're moving past dreaming and into fantasizing! lol!)
I can play a 4 hour session and play well. (At least they haven't kicked me out of the band yet.) After such a session, I find myself completely wiped, needing extra rest for a couple of days. I would not be able to play rehearsals and shows on a regular basis, but I am still able to play. So I do. Wish I could do it more often, but that's the hand that was dealt me.
I am not the only drummer out there with Parkinson's or any other handicap, ftm. There is even a web site devoted to drummers with handicaps. As this disease progresses, if this disease progresses, I may turn to hand drums and percussion from the full kit. I will write more to tap into my creative vein. I have other artistic endeavors I wish to pursue, as well.
I say 'if this disease progresses.' I just received a copy of a letter from the UCSF 2nd opinion MS doctor to my original neurologist, (whom I have switched from because she does not accept Medi-Cal health coverage.) In it, she was questioning whether this actually is Parkinson's or not, while not offering a more definitive prognosis.
Well....Ohhh Kaaay. This is (may be?) a good thing? If it's not PD, then what? So then what? I have read that Effexor causes 'Parkinsonism', which presents similar to PD. Will I return to near normal after serious time away from it? I don't know. All I know is that I still feel like shit almost every day. I can get some stough done every day, but 8 hours of grinding for someone else? That just ain't gonna happen.
In any event, I would love to be playing drums every day, rehearsals evey week, and shows every month, but right now, that ain't gonna happen, either. I would trade the crud and the blue handicapped parking card that goes with it in for a normal job and life in a heartbeat!










